A Caregiver's Inspirational Journey Through Cancer
Posted in Abecma Car T, Caregiver Thoughts, Caregiver Tips, Misc, Multiple Myeloma on Oct 15th, 2021
“The greatest wealth is Health.” – Unknown One of many challenges we face in any cancer journey is how to better our odds to overcome the disease, survive the toxic chemos needed to push the cancer into remission or cure it. And then, how do you restore your schnockered immune system. Many myeloma cancer patients […]
Posted in Caregiver Thoughts, Caregiver Tips, Misc, Multiple Myeloma on Apr 12th, 2017
“Has anyone seen my brain? It ran off flailing and screaming about being overwhelmed this morning. I’d really like it back.” – Unknown This week I’m dog sitting nearby at someone’s home (not my usual, they usually stay at my house). Anyway, it’s a good quiet time for me to ponder all the […]
Posted in Caregiver Thoughts, Caregiver Tips on Dec 2nd, 2013
“Each of us has his own rhythm of suffering.” – Roland Barthes We have lost many this year to MM and other cancers or health issues. Having conversations with my many friends, both personally and via the net, one thing comes through loud and clear, getting through milestones and anniversaries is very hard. With the […]
Posted in Caregiver Thoughts, Caregiver Tips, Misc on Jul 15th, 2012
“Communication is a continual balancing act, juggling the conflicting needs for intimacy and independence. To survive in the world, we have to act in concert with others, but to survive as ourselves, rather than simply as cogs in a wheel, we have to act alone.” – Deborah Tannen Several recent conversations and postings with caregivers and […]
Posted in Caregiver Thoughts, Caregiver Tips, Our Life on Apr 25th, 2012
“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” – Brian Tracy Needing or asking for help from others often pushes us way outside our comfort zone. We are the ones […]
Posted in Caregiver Thoughts, Caregiver Tips, Multiple Myeloma on Apr 24th, 2012
“Fear is only as deep as the mind allows.” – Japanese Proverb There are times that a topic seems to speak to me with a mega phone. It comes from various sources and begins to clobber me over the head as something that needs to be spoken out loud, and in my case, written here, hitting […]
Posted in Caregiver Thoughts, Caregiver Tips, Misc on Feb 17th, 2012
“Being there and helping someone I love, in the leaving of their earthly body, was a profound gift that I was honored she allowed me to do for her. In many ways it was she who gave me the gift and not the other way around.” Lori Puente, on the death and dying of her […]
Posted in Caregiver Thoughts, Caregiver Tips, Misc on Feb 11th, 2012
“If you realize that all things change, there is nothing you will try to hold on to. If you are not afraid of dying, there is nothing you cannot achieve.” – Lao Tzu From Gail Sheehy’s Eight Labyrinths and the book Passages in Caregiving: . . . . . . . . . VII. The In-Between […]
Posted in Caregiver Thoughts, Caregiver Tips, Misc on Feb 10th, 2012
“The secret of health for both mind and body is not to mourn for the past, not to worry about the future, or not to anticipate troubles, but to live in the present moment wisely and earnestly.” – Siddhartha Gautama (Buddha) From Gail Sheehy’s Eight Labyrinths and the book Passages in Caregiving: . . . […]
Posted in Caregiver Thoughts, Caregiver Tips, Misc on Jan 30th, 2012
“I had an inspiration while walking a labyrinth. You go in circles, sudden twists and turnings. It’s a lot like the surprises and complications we face on our journey as caregivers. A labyrinth has one true path. It can eventually lead us to the center, but you can’t see the path ahead. It’s not predictable.” […]
Posted in Caregiver Thoughts, Caregiver Tips, Misc on Oct 16th, 2011
“Gratitude is an art of painting an adversity into a lovely picture.” – Kak Sri It is not an easy task to find something good in the middle of a cancer diagnosis. As you travel down this path for a while, trust me, you will indeed find new and wonderful things. Hang in there. Here […]
Posted in Caregiver Tips, Multiple Myeloma on Sep 19th, 2011
“The human spirit is stronger than anything that can happen to it.” -C.C. Scott Here’s the link to the blood cancer channel – and to my “Food Portion Trick” on WEGO Health TV’s new health channel. Another bright idea to bring patients and caregivers together online. 0
Posted in Caregiver Tips, Multiple Myeloma on Apr 17th, 2011
“Drugs are not always necessary. Belief in recovery always is.” – Norman Cousins You’re going to start treatment. You are going to be receiving Melphalan as one of the chemotherapy cocktail drugs. This is what you need to know. Sadly, it is just one more thing YOU have to be proactive about – maybe. Some nurses, […]
Posted in Caregiver Tips, Multiple Myeloma on Apr 7th, 2011
“Most of our obstacles would melt away if, instead of cowering before them, we should make up our minds to walk boldly through them.” – Orison Swett Marden I wrote this piece for The Myeloma Beacon. I hope it helps those of you struggling with chronic pain, which can be so debilitating, both physically […]
Posted in Caregiver Tips, Misc, Multiple Myeloma on Mar 13th, 2011
“Every man dies – Not every man really lives.” – William Ross Wallace As we have all watched and heard about the disaster in Japan of such proportion its hard to get my mind around just how devastating this disaster has been in its size and scope. Intellectually I think I get it, but I […]
Posted in Caregiver Tips, Misc on Feb 11th, 2011
“We are living in a world today where lemonade is made from artificial flavors and furniture polish is made from real lemons.” – Alfred E. Newman We are debating treatment in Myeloma, Stem Cell Transplant vs management. We are debating maintenance therapy or not. Politics, terrorism, all manner of things. It seems that it is […]
Posted in Caregiver Tips, Misc on Feb 10th, 2011
“Happiness is your dentist telling you it won’t hurt and then having him catch his hand in the drill.” – Johnny Carson Most of us on are on biophosphates to strengthen the bones after the onslaught of Myeloma. Before you got on this infusion, done every several weeks or few months, you needed to get a […]
Posted in Caregiver Tips, Misc, Multiple Myeloma on Feb 5th, 2011
Mission: to provide effective mediation and arbitration services to patients to remove obstacles to healthcare including medical debt crisis, insurance access issues and employment issues for patients with chronic, debilitating and life-threatening illnesses. 0
Posted in Caregiver Thoughts, Caregiver Tips on Feb 4th, 2011
“Do what you can, with what you have, where you are. – Theodore Roosevelt “What do you do to keep yourself in good shape and spirits as a caregiver, and what advice would you offer other caregivers about caring for themselves?” – a Q&A question at a recent talk I gave and a great question! 0
Posted in Caregiver Tips on Jan 22nd, 2011
“He that takes medicine and neglects diet wastes the skills of the physician.” – Chinese proverb When my mother was ill with cancer and found it difficult to eat “enough” to satisfy my concerns, I began a fervent search for a supplemental way to provide some protein into her diet. 0
