Riding The Wave – Multiple Myeloma

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“It is easy to get a thousand prescriptions but hard to get one single remedy.”  – Chinese Proverb A story at Yahoo is stating that acetaminophen is now connected to increased risk of blood cancers. Now that caught my attention of course. But then, as we often do, I thought “Dave never took Tylenol or any […]

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All is well, no worries… Sarah chided me (rightly so) for using a sensational headline! Sorry. It’s just we never really are too far from “Myelomaville” and I have been ‘away’ doing other fun and meaningful things in my life of late… a good thing. Thus, ‘Back to Myelomaville’ to check in and write… 2

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“The moment a child is born, the mother is also born.” – Rajneesh Happy Mother’s Day to everyone. A lovely day of sharing or remembering our mothers. I often remember not just my own, but all those who “mothered me” along the way. Their nurturing, their care, their hugs, their advice, their laughter. 3

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“Art enables us to find ourselves and lose ourselves at the same time.”- Thomas Merton Sorry I haven’t been posting lately! It has been a wonderfully busy time for me! I have been taking a weaving class from Robyn Lynde of Meridian Jacobs farm in Dixon, CA. The class, my friend Kathi and I took, […]

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Two men, both seriously ill, occupied the same hospital room. One man was allowed to sit up in his bed for an hour each afternoon to help drain the fluid from his lungs. His bed was next to the room’s only window. The other man had to spend all his time flat on his back. […]

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Short and sweet. I put it up because it mentions MULTIPLE MYELOMA and Geraldine Ferraro. (hat tip Pat Killingsworth at Living With Myeloma) Research costs A LOT! Litigation costs A LOT! It takes a LONG TIME! And then we are a small group, relatively speaking. Although I often feel like Myeloma is EVERYWHERE! I want them to […]

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“He who has health, has hope. And he who has hope, has everything.” – Proverb See Newer Posts Below… 0

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“Fill your paper with the breathings of your heart.”  – William Wordsworth There was a time when there were few bloggers writing about Myeloma, in the not too distant past. I was one of the few caregivers who started to write about my experience, and then as I’ve mentioned recently, there was Susie Hemingway, Caregiver […]

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“Take small steps and celebrate the successes.” – Sarah’s minister friend Sarah, a Myeloma caregiver has been dealing with the often overwhelming onslaught of Multiple Myeloma entering her life. She has been blogging about her journey and has a delightful honesty about her struggles and her successes. 0

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“Service to others is the rent you pay for living on this planet.” ― Marian Wright Edelman Another great post over at The Myeloma Beacon by Sean Murray who blogs on Myeloma Youreloma. Sean has a delightful family and dear friends and I enjoy the generosity of his sharing snippets into his life as he manages his […]

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“Carpe diem! Rejoice while you are alive; enjoy the day; live life to the fullest; make the most of what you have.” – Horace Beth Morgan’s Myeloma Listserv has some wonderful folks who are intimately connected with Multiple Myeloma. This recently went out by a Myeloma survivor that was incredibly impressive to me, and I […]

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According to the study, one would have to “undergo 50 airport body scans to equal the amount of radiation received from a single dental X-ray” When the full body scanners hit the airports, I hit the roof. Having spats on my Facebook page with those who support stronger security and those who find this an […]

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“For a brief time earlier this month, the National Cancer Institute, a branch of the federal government’s National Institutes of Health, had posted a webpage touting the possible benefits of marijuana in fighting cancer tumors. But less than two weeks after it went up, the webpage was altered and the approving words stricken.” – Article […]

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“We were prepared for death, we were not prepared for disability.” – Lori Puente A good article (hat tip, Pat Killingsworth) at Everyday Health talking about the high cost of treating Multiple Myeloma. Beth Morgan, who runs the Myeloma ListServ (Thanks Beth!) offers some her experience with the high costs she has encountered. 1

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“Here comes the sun (dooda doodoo), here comes the sun, and I say it’s all right.” – The Beatles It’s just an incredibly beautiful day here in N. California. Blue skies, light breeze, sunshine, birds singing, flowers blooming, kids playing and one happy dog named Kip who got a midday walk! 0

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“The difference between reality and fiction? Fiction has to make sense.” – Tom Clancy Hey! There’s a new kid on the block! Angie Murray, a Myeloma caregiver I was privileged to meet in Little Rock last year, along with her husband who had just finished up his tandem transplants, has decided to start a blog on […]

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“To a journalist, good news is often not news at all.” – Phil Donahue Do you ever find yourself getting blue, depressed, annoyed for no apparent reason? Generally when I’m feeling this way, its the NEWS. The 24 hour cable news cycle, repeating ad nauseum the disasters, political infighting, and other such bad stuff with […]

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