Riding The Wave – Multiple Myeloma

“Life can have challenges that seem to be trying to crush the soul. Art reminds us that it is simply impossible to destroy the essentials of who you are – an artist, a creator of beautiful things.” – Lori Puente Before Dave got sick, I still had some dreams I hoped to embark on. One […]

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People say that losing weight is no walk in the park.  When I hear that I think, yeah, that’s the problem.  – Chris Adams When I meet cancer/MM patients who exercise vigorously and look terrific, I’m envious. Not that envy is much of characteristic I’m burdened with (thank goodness), but you get the idea. It […]

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“Anyone can catch your eye, but it takes someone special to catch your heart.”  – Author Unknown Enjoy something special this year, February 14th. Whether you are with someone or alone, it is a day where we celebrate the idea of romance. For my dear caregiver friends who have lost their spouses to Multiple Myeloma… […]

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“We are living in a world today where lemonade is made from artificial flavors and furniture polish is made from real lemons.”  – Alfred E. Newman We are debating treatment in Myeloma, Stem Cell Transplant vs management. We are debating maintenance therapy or not. Politics, terrorism, all manner of things. It seems that it is […]

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“Happiness is your dentist telling you it won’t hurt and then having him catch his hand in the drill.” – Johnny Carson Most of us on are on biophosphates to strengthen the bones after the onslaught of Myeloma. Before you got on this infusion, done every several weeks or few months, you needed to get a […]

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“When we feel love and kindness toward others, it not only makes others feel loved and cared for, but it helps us also to develop inner happiness and peace.” – Dalai Lama A bit of “fluff” today, you say? Well, there are those who find this stuff annoying and silly, and those who find it […]

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“Prescription drugs kill some 200,000 Americans every year. Will that number go up, now that most clinical trials are conducted overseas—on sick Russians, homeless Poles, and slum-dwelling Chinese—in places where regulation is virtually nonexistent, the F.D.A. doesn’t reach, and “mistakes” can end up in pauper’s graves?” 0

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“Tumblr makes it effortless to share anything you find or create. Post text, photos, quotes, links, dialogues, audio, video, slideshows, and more…” 0

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“The Internet is just a world passing around notes in a classroom.”  – Jon Stewart I don’t mean to be flip… I LOVE the internet and its ability to share cool things and things of value. 0

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Mission: to provide effective mediation and arbitration services to patients to remove obstacles to healthcare including medical debt crisis, insurance access issues and employment issues for patients with chronic, debilitating and life-threatening illnesses. 0

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“Somewhere, something incredible is waiting to be known.” – Carl Sagan Wow! How things have changed for us dealing with Myeloma. For newly diagnosed patients, while we, who have been before you, are sorry for what you are facing now, we are really happy and sometimes envious of all the bloggers, The Myeloma Beacon, great […]

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“We don’t laugh because we’re happy, we are happy because we laugh.” – William James (1842-1910) Disclaimer: If you are new to cancer or Myeloma, this post will not be for you. If curiosity gets the better of you and you keep reading, I hope that in your difficulties as a newly diagnosed patient you won’t […]

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“Bureaucracy is the death of all sound work” – Albert Einstein HIPAA, The Health Information Portability and Accountability Act of 1996, was enacted as a broad Congressional attempt at incremental healthcare reform. The Administrative Simplification section of HIPAA is designed to improve the efficiency and effectiveness of the healthcare system by standardizing the electronic data […]

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Huntsman Cancer Institute’s Multiple Myeloma Program “Hope Through Discovery” Link here Jon Huntsman, a self made billionaire and author of “Winners Never Cheat”, funded and created the Huntsman Cancer Institute in Salt Lake City, Utah at the University of Utah. Mr. Huntsman after battling his own cancer put his money where his heart is, as […]

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“… a growing body of scientific evidence is building the case that the spiritual balance created by yoga provides proven health benefits.” – from article (link here) Yoga is becoming very “mainstream”. It is growing in popularity around the world. Yoga studios are popping up all over the place and classes are offered routinely in local […]

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“If you have learned how to disagree without being disagreeable, then you have discovered the secret of getting along — whether it be business, family relations, or life itself.” – Bernard Meltzer While on social cancer websites, list servs, private conversations, emails, etc. I have “watched” or been involved in the continuing debate about positive […]

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“Respect for ourselves guides our morals; respect for others guides our manners.” – Laurence Sterne I have had very personal relationships good and bad with physicians over the years. It was a rocky road for me. I didn’t like them generally, the arrogance mostly. Their attempts at intimidation of their patient as I viewed it. […]

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“In my day, socializing was going out to a party to meet people. Now, socializing is taking place via networked devices.” – Zach Nelson 1

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What Are Grandmas For? Grandmas are for stories about things of long ago. Grandmas are for caring. about all the things you know…. Grandmas are for rocking you. and singing you to sleep.. Grandmas are for giving you. nice memories to keep…. Grandmas are for knowing. all the things you’re dreaming of…. But, most importantly […]

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“The human spirit is stronger than anything that can happen to it.”  – C.C. Scott Two of my myeloma buddies aren’t doing so well at the moment. Their numbers are rising, there is concern. One I’m very close to and have garnered deep affection for. The other a blogger I’ve never met and have come […]

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