“One person caring about another represents life’s greatest value.” – Jim Rohn Lou writes a column called Birds in Spring for The Myeloma Beacon. He has such wonderful insights in many areas and its always a pleasure to read his latest musings. Caregivers are such an integral part of a Myeloma patient’s journey. His acknowledgement is […]
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“There is no ideal Christmas; only the one Christmas you decide to make as a reflection of your values, desires, affections, traditions.” – Bill McKibben When Dave and I were in Little Rock during the holidays in 2008, he was emotionally and physically struggling. He was sad, some would argue depressed, in pain, insecure, frightened, […]
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Posted in Multiple Myeloma on Dec 17th, 2010
“Overall, there is a statistically significant advantage to early stem cell transplantation in patients under the age of 65… ” – Dr. Siegel Another great article at The Myeloma Beacon. There is still much analysis to do on this issue, but its good to see that it is going on, vigorously, so that newly diagnosed patients […]
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“The caregiver has to know what to do and who to call,” Lori said. It was such an honor to have Little Rock be my debut speaking engagement. I love it there and I love my “Myeloma Buddies”. Those I know and those I have never met. It is just a place that you step […]
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A state-of-the-art test assesses prognosis and helps individualize therapy. An article appearing in HemOnc Today, Clinical News in Oncology and Hematology. One of the most unique diagnostic tests developed at UAMS in their 21+ years of exclusively researching Multiple Myeloma at the Myeloma Institute of Research and Therapy (MIRT). 0
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“Gratitude is an art of painting an adversity into a lovely picture.” – Kak Sri Sean, of Myeloma Youreloma, is a regular columnist over at The Myeloma Beacon. He is a writer by profession, an artist with words, and I always enjoy both his blog posts and his articles. He has written a lovely article […]
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Posted in Multiple Myeloma on Dec 14th, 2010
“…I’ve reached a point now where I view my myeloma as more of an inconvenience than incapacitating.” – Hosea Long Thank you Hosea, for sharing your story and offering Hope and Inspiration to the rest of us! 0
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“It’s hard to find Myeloma Survivors because they are out living their lives!” – Unknown David Emerson, a Myeloma Survivor who used to run the Beating-Myeloma forum and now runs the People Beating Cancer website, has a survivor story on his site of Barbara Hammack. David’s own story of beating Myeloma is very unique and […]
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Posted in Misc, Multiple Myeloma on Dec 12th, 2010
Kris’ latest blog entry is hopeful! If you are so inclined, have a read. Kris is someone who went thru the Total Therapy regimen at the well regarded Huntsman Cancer Institute in Utah, (the ‘sister clinic’ to Little Rock). Nice and Normal Thanks Kris! 0
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Posted in Misc, Multiple Myeloma on Dec 8th, 2010
“If it keeps up, man will atrophy all his limbs but the push-button finger.” ~Frank Lloyd Wright Some time ago, I created a Riding the Wave Facebook “Page”. Not really having a clue about what I was doing and it has languished for some time. I couldn’t quite figure out “how” I would use it […]
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Posted in Misc, Multiple Myeloma on Dec 8th, 2010
I urge you to go on over to The Myeloma Beacon and read the daily reporting on the ASH Conference paper presentations, Q&A, etc., going on right now concerning Multiple Myeloma. It is a great way to get snippets of the latest research translated into understandable sound bites for us “lay” folks dealing with Multiple […]
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Posted in Multiple Myeloma on Dec 8th, 2010
“Many of the great achievements of the world were accomplished by tired and discouraged men who kept on working.” – Unknown This would certainly be a good description of Dr. Bart Barlogie and his “team” of researchers at UAMS. 0
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The Myeloma Beacon (click link) published another great article today by Dr. Vincent Rajikumar, (a professor of medicine at the Mayo Clinic in Rochester, Minnesota. His research focuses on clinical, epidemiological, and laboratory research for myeloma and related disorders.) First, if you aren’t reading The Myeloma Beacon regularly as a caregiver or patient of Multiple […]
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Dr. Watson points out that scientists are correctly looking at DNA before they treat early-stage cancer, since different drugs work on different genes. The discoverer of the double-helix says the disease can be cured in his lifetime. He’s 82. An interesting interview (click link to read) with Dr. James Watson (wikipedia bio) on curing cancer, its research, […]
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Posted in Multiple Myeloma on Nov 23rd, 2010
A beautiful woman who has become someone I care so deeply for, though we have never met. I met her through my Multiple Myeloma journey as Dave’s caregiver online. Her husband, Hamada, lost his battle with Myeloma today and I’m saddened by this news, though it was coming, we all knew, even Susie, but we […]
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Posted in Multiple Myeloma on Nov 23rd, 2010
“It hasn’t been disproven either!” – Dr. M. G., my friend (when I was told tandem was not a “proven” treatment) Long-Term Follow-Up of Tandem Autologous Stem-Cell Transplantation in Multiple Myeloma Story in The Myeloma Beacon (which is helpful in evaluating the study) 0
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Posted in Misc, Multiple Myeloma on Nov 19th, 2010
“I am ill at these numbers” – William Shakespeare Great Post about all the diagnostic tests, and their explanations, a new patient endures when they venture to Little Rock, Arkansas, UAMS for consultation. Its written by MM patient Sean Murray of Myeloma Youreloma at the Myeloma Beacon where he writes a wonderful column called: Sean’s Burgundy […]
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“Making Light of Myeloma” A worthwhile post to read by Myeloma Patient, Sean Murray (click title link). I would encourage you to put him on your blog list if you are looking for inspiration and hope in fighting this disease. Sean, as a professional writer, has a lovely way of expressing himself on this very […]
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“Life isn’t about waiting for the storm to pass. Its about learning to dance in the rain!” – Unknown I’ve just returned from my “speaking engagement” in Little Rock. A day of travel from Sacramento, nothing new there. There still isn’t a direct flight even when a travel agent takes care of it! A day […]
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“The only courage that matters is the kind that gets you from one moment to the next.” ~Mignon McLaughlin Once you have decided that you are going to move forward with a Stem Cell Transplant (SCT), there are naturally a lot of concerns about this process of wiping out your loved one’s immune system, putting […]
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