Posted in Multiple Myeloma on Nov 8th, 2010
Sharing experience of hope and strength Some months back I was contacted by a consulting group who organizes speaking engagements for particular disease modalities that they have been hired to work on. Originally they were looking for Dave to participate. But after much conversation they agreed to allow me to participate in the Ambassador training […]
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I have put a link in my “Resources” tab from Don’s Myeloma Hope Blog regarding this. I found I was always hunting for it to pass along to someone who was trying to deal with this common side-effect from chemotherapy treatments. I like this link so much, because he includes many different regimens that are […]
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Posted in Multiple Myeloma on Sep 29th, 2010
In my Resources Tab and my Blog Roll Links is The Myeloma Beacon which is one of the best sources of information, in my humble opinion, for MM patients and their families. I interviewed with them for a series of articles regarding Caregiving with MM. Caregiving Article Part I Caregiving Article Part II Caregiving Article […]
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“There’s nothing half so pleasant as coming home again.” – Margaret Elizabeth Sangster Finally! I’m home at last! I got in around midnight last night from Miami via Minneapolis/St Paul. A long day of traveling to be sure. My phone went on the fritz part way through my trip and then with all the traveling […]
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“They restored my faith and my hope by helping me.” – Tyler Jones If you are having trouble with your care, every hospital facility has a Social Worker that is on staff at the hospital. Sometimes they have fancy names, but search them out, ask for them. Even if your not having trouble it is […]
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CB# 28 “No one experiences freedom until they stop pushing against others. The only thing that binds you is the pushing against that which is unwanted.” – Abraham The rules in California are like none other, when it comes to healthcare. I have several complaints that have made our experience more difficult than it needed […]
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It was hot and sticky in Little Rock, but a virtual cool down in comparison to the weather they have been having on the East Coast. We had a great meet up with Bruce & Jan, but additional tests for Bruce prevented us from having dinner a second night and saved the boys’ wallets as […]
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Dave and I are currently in Little Rock for one of his regular checkups. MRI, blood work, bone marrow biopsy and a chat with our doctor to see how things are going. Believe it or not we enjoy coming. We are here in a very different way than the long year of treatment and weeks […]
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ARGH! Dave was getting a sore throat last week and got a nice hacking cough. He’s successfully on the mend, but it brings up that FEAR that strikes at the heart of even the toughest caregivers whose loved ones have cancer where they have wiped out your immune system to try to get you back […]
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There are a lot of people with MM who have been using Tumeric (cucurmin) with excellent results. I have filed in the back of mind as a mental note to look more into this. I posted the following on my Caring Bridge site and wanted to share it. CB Entry (Out of Order) Thursday, August […]
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I’ve been avoiding writing a post on this… why? Because what works for one, or some, doesn’t always work for others. When you have cancer, migraines, back problems, depression or a whole host of other chronic illnesses, people come out of the woodwork to tell you what to try or what they read or what […]
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Posted in Multiple Myeloma on Feb 25th, 2010
November 4th, 2021: I’m in the process of cleaning this up. It is a grammatical mess! You’ll get the gist, but do check back. Lori This is an article I was asked to write after a bit of a debate regarding the treatment at Little Rock. It was initially posted on Pat Killingsworth MM […]
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Posted in Misc, Multiple Myeloma on Jul 12th, 2009
You know how people will often say (including me), “Enjoy the journey”? Well, I wasn’t enjoying this journey, despite the beautiful moments and people I discovered along the way, I found that I would have liked to learn all the lessons, sans the journey through cancer. Thus, my title “Riding the Wave.” I was dropping […]
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Posted in Misc, Multiple Myeloma on Jul 12th, 2009
Dave and I were in the middle of a coast to coast relocation. Our children were safely and securely nestle into college back in Maryland. I was busy tying up lose ends, getting the house sold and packed up, winding up my job and planning to help find my replacement. Dave was already in California, […]
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