A Caregiver's Inspirational Journey Through Cancer
Posted in Abecma Car T, Caregiver Thoughts, Multiple Myeloma on Oct 26th, 2021
“Courage is being scared to death but saddling up anyway.” – John Wayne We went in today for labs and a check-in with our team. Quick in and out early this morning. We did not expect the rest that came, but it was all outstanding—meeting with the Bristol Meyers liason at UAMS, who does an […]
Posted in Abecma Car T, Caregiver Thoughts, Kids, Misc, Multiple Myeloma, Our Life on Oct 20th, 2021
“Winners never quit and quitters never win.” –Vince Lombardi Dave continues to improve daily with his femur fracture. His PT person is pushing him within reason and chats about the why and what of it. She’s very encouraging. Today she said when he said he wasn’t doing 30 of each exercise, “If you were doing […]
Posted in Abecma Car T, Caregiver Thoughts, Caregiver Tips, Misc, Multiple Myeloma on Oct 15th, 2021
“The greatest wealth is Health.” – Unknown One of many challenges we face in any cancer journey is how to better our odds to overcome the disease, survive the toxic chemos needed to push the cancer into remission or cure it. And then, how do you restore your schnockered immune system. Many myeloma cancer patients […]
Posted in Abecma Car T, Misc, Multiple Myeloma, Our Life on Oct 13th, 2021
“Anybody can sympathize with the sufferings of a friend, but it requires a very fine nature to sympathize with a friend’s success.” ― Oscar Wilde Years ago, when I wrote my opinion piece at The Myeloma Beacon on our incredible success with HBOT (Hyperbaric Oxygen Therapy), it garnered considerable attention from those in that world. It […]
Posted in Abecma Car T, Caregiver Thoughts, Kids, Misc, Multiple Myeloma on Oct 11th, 2021
“Don’t be pushed around by the fears in your mind. Be led by the dreams in your heart.” ― Roy T. Bennett, The Light in the Heart There will probably be a lot of “MishMash Musings” in the coming weeks leading up to Dave beginning his Abecma Car T Therapy, currently scheduled for Halloween. Perfect if […]
Posted in Abecma Car T, Caregiver Thoughts, Kids, Multiple Myeloma, Our Life on Oct 7th, 2021
“And in the end, it’s not the years in your life that count. It’s the life in your years.” – Abraham Lincoln Another stellar day here in Little Rock yesterday. We managed to get the car registered, and so now we are 100% legal! One of my fellow apartment dwellers gave me the “better” Motor […]
Posted in Abecma Car T, Caregiver Thoughts, Multiple Myeloma on Oct 5th, 2021
“Love and compassion are necessities, not luxuries. Without them, humanity cannot survive.” – Dali Llama Every day here, I’m meeting and interacting with people in a profound and fun way. It’s like I’m in one giant neighborhood as I meander around from venue to venue. Often, I’m chatting with them while making a purchase or […]
Posted in Caregiver Thoughts, Misc, Multiple Myeloma, Our Life on Oct 2nd, 2021
“You’re always on your way somewhere. The key is: find a way to be happy wherever you now are on your way to where you really want to be. (We’re speaking of the state of being you want.) It does not matter where you are; where you are is shifting constantly – but you must […]
Posted in Abecma Car T, Caregiver Thoughts, Misc, Multiple Myeloma on Oct 1st, 2021
“Sometimes, the best way to help someone is to just be near them.” – Veronica Roth, Divergent Today I witnessed one of those moments between another couple in the throws of the journey of Myelomaville. My assessment was they are at the beginning of their journey, and I so wanted to go over and say, […]
Posted in Abecma Car T, Caregiver Thoughts, Misc, Multiple Myeloma on Sep 29th, 2021
Acknowledge simple gifts. There are gifts all around us. I’m an old-fashioned road trip kinda gal, so I ordered an Adventure Edition of a road atlas and a full fold-out paper map of the USA for our road trip home. I’ve already put in several stops and come up with about nine days. Dave has […]
Posted in Abecma Car T, Caregiver Thoughts, Misc, Multiple Myeloma on Sep 23rd, 2021
“Medical science has proven time and again that when the resources are provided, great progress in the treatment, cure, and prevention of disease can occur.” – Michael J. Fox So in an effort to learn more about all of this, when I get the chance I ask a few questions of our doctor while we […]
Posted in Abecma Car T, Caregiver Thoughts, Misc, MM Chrono Journey, Multiple Myeloma on Sep 23rd, 2021
“Turn off the news and get out in the world. It is full of wonderfulness and humanity.” – Lori Puente What a whirlwind this particular episode in our reluctant Myelomaville adventures. Our original plan was that Dave would come out and get his T Cells collected on September 13th. (Well really mid-August, but the pharma […]
Posted in Caregiver Thoughts, Misc, Multiple Myeloma on Sep 20th, 2021
“How important is it?” This is one of the questions I’ve learned over my life that is worth asking. Many times I would have written a letter and ventured off into phone calls and wasted precious time setting them straight and taken my time and energy away from what Dave and I were dealing with. […]
Posted in Abecma Car T, Multiple Myeloma, Our Life on Sep 19th, 2021
“Look for what is good and you will certainly find it.” – Anne Perry We have been on yet another unexpected journey. I’ve been posting snipets at my companion FB page called Riding the Wave (you can search Multiple Myeloma too and it should come up.) My blog has been very quirky and weird over […]
Posted in Caregiver Thoughts, Multiple Myeloma on Jan 15th, 2021
“Courage is fear holding on a minute longer.” – Gen. George S. Patton We have had bits of respite here and there after Dave’s relapse in year 5 or somewhere in that time frame. Then things just started being troublesome. Little annoying little things that Dr. VanRhee was watching and suspicious of. Each time, his […]
Posted in Caregiver Thoughts, Multiple Myeloma on Apr 14th, 2017
“We thought that we had the answers, it was the questions we had wrong.” – Bono So to bring you up to speed a little more, we are on Daratumumab (Darzalex). The seemingly more popular of the new immunotherapies that came out November 2015. When we were told we would be moving to that, I was scrambling […]
Posted in Caregiver Thoughts, Multiple Myeloma on Apr 13th, 2017
“Science without religion is lame, religion without science is blind.” – Albert Einstein I’m not a particularly religious person, but I am a devoutly spiritual person. I guess you could put me in the category of all the weird new age stuff, although I would reject that label. I just found my way with some […]
Posted in Caregiver Thoughts, Caregiver Tips, Misc, Multiple Myeloma on Apr 12th, 2017
“Has anyone seen my brain? It ran off flailing and screaming about being overwhelmed this morning. I’d really like it back.” – Unknown This week I’m dog sitting nearby at someone’s home (not my usual, they usually stay at my house). Anyway, it’s a good quiet time for me to ponder all the […]
Posted in Caregiver Thoughts, Multiple Myeloma, Our Life on Apr 11th, 2017
“Change is the only constant, whether it’s in music, culture, dance or fashion.” – Sonu Nigam First, I’ve missed you guys, although many of us have migrated over to FB and the various groups there that offer us information, hope, and inspiration. I’ve felt for some time, as you may recall, […]
Posted in Multiple Myeloma on Apr 29th, 2016
Take Action: Let CMS Know that ICER Recommendations are Bad for Myeloma Patients IMF has set up a great response with talking points and necessary links for you, the patient, the family, the caregiver, the nurse, the doctor, to make your voice heard on the ICER recommendations as well as how it will specifically be […]
