A Caregiver's Inspirational Journey Through Cancer
Posted in Misc, Multiple Myeloma on Apr 26th, 2012
“Faith is the daring of the soul to go farther than it can see.” – Unknown David Withem over at Working With Me started a Myeloma 101 website and then from there started a YouTube selected videos offering hope and inspiration. They are works in progress and he graciously tries to share with us those things […]
Posted in Caregiver Thoughts, Caregiver Tips, Multiple Myeloma on Apr 24th, 2012
“Fear is only as deep as the mind allows.” – Japanese Proverb There are times that a topic seems to speak to me with a mega phone. It comes from various sources and begins to clobber me over the head as something that needs to be spoken out loud, and in my case, written here, hitting […]
Posted in Caregiver Thoughts, Misc, Multiple Myeloma on Mar 20th, 2012
“There are three side effects of acid: enhanced long-term memory, decreased short-term memory, and I forget the third.” – Timothy Leary For those of us through treatment – been there, done that. The long list of potential side effects from the treatment to combat myeloma is long and scary. For those newly on this road, […]
Posted in Multiple Myeloma on Mar 16th, 2012
(Hat Tip David Withem, done by Patient Power) 1
Posted in Caregiver Thoughts, Misc, Multiple Myeloma on Mar 7th, 2012
An e-patient (also known as Internet patient, or Internet-savvy patient) is a health consumer who uses the Internet to gather information about a medical condition of particular interest to them, and who use electronic communication tools (including Web 2.0 tools) in coping with medical conditions. The term encompasses both those who seek online guidance for their own ailments and […]
Posted in Caregiver Thoughts, Multiple Myeloma on Feb 21st, 2012
“Take cover – it’s DEX DAY!” – Myeloma Caregivers joking around with each other on the subject of the steroid, Dexamethasone. Dexamethasone, is a love/hate relationship. It has clearly been shown to enhance the chemotherapy drugs myeloma patients are taking in all genre’s of treatment. That’s the love part, in case you’re wondering. But it’s […]
Posted in Caregiver Thoughts, Multiple Myeloma on Feb 10th, 2012
“Courage isn’t the absence of fear; it’s the dealing with it.” From Gail Sheehy’s Eight Labyrinths and the book Passages in Caregiving: . . . . . . . . V. “I Can’t Do This Anymore!” You were convinced you could do it differently. You’d be fine. But one day, a year or two or […]
Posted in Caregiver Thoughts, Multiple Myeloma on Feb 3rd, 2012
“…you’re the only one who truly understands what he or she needs.” – Gail Sheehy, Passages in Caregiving Gail Sheehy’s Labyrinth IV is Playing God. “By now you’ve become a seasoned caregiver. You’re good at it and the only person your loved one trusts. You also believe you’re the only one who truly understands what he […]
Posted in Caregiver Thoughts, Multiple Myeloma on Feb 2nd, 2012
“Life isn’t about waiting for the storm to pass. It’s about learning to dance in the rain!” – Unknown In Gail Sheehy’s Eight Labyrinths of Caregiving, Labyrinth III is the Boomerang. A boomerang is an aerodynamically shaped object designed to fly efficiently through the air when thrown by hand. The term usually refers to an […]
Posted in Multiple Myeloma on Jan 29th, 2012
“The rules of the past no longer apply.” – Ken Anderson, MD, Dana Farber An interview with Ken Anderson at the 53rd ASH Conference on New Therapies and Changing Cytogenetics, that might be of some interest and value to those of you with abnormalities that were once considered problematic that are no longer. It is […]
Posted in Misc, Multiple Myeloma on Jan 27th, 2012
Guido Tricot, MD, PhD, is the director of Holden Cancer Center’s Bone Marrow Transplant and Myeloma Program at UI Hospitals and Clinics. He specializes in multiple myeloma and has been researching and treating this type of cancer for over 20 years. Dr. Tricot, who had been heading up the only Total Therapy program outside of […]
Posted in Multiple Myeloma on Jan 27th, 2012
Andrew Schorr: Are you optimistic? Jack Aiello: I’ve said to patients for the last 10 years, if you’re going to be diagnosed with myeloma it’s a lot better now than it was 15 years ago. And that holds true, year after year after year… Thanks David at Workingwithme. 0
Posted in Caregiver Thoughts, Multiple Myeloma on Jan 21st, 2012
“Before I even knew what we would do, what the treatment would be, or it’s outcome, I had to get Dave’s head in the game!” – Lori Puente There is a wonderful article over at The Myeloma Beacon, by Kevin Jones where he talks about the battle between him and his MM. It has garnered […]
Posted in Multiple Myeloma on Jan 13th, 2012
“If we knew what it was we were doing, it would not be called research, would it?” – Albert Einstein Recently there was a study about treating those MM patients that were historically in the “wait and see” mode. As you can imagine folks were a bit rattled (an understatement). Kind of like how we feel […]
Posted in Caregiver Thoughts, Multiple Myeloma on Jan 13th, 2012
“It’s not about waiting for the storm to pass. It’s about learning to dance in the rain!” – Unknown We have a very active FB MM Support Group (check my resources page if you haven’t joined yet). So far with over 400 members we are very thoughtful, kind and supportive toward one another, regardless of […]
Posted in Caregiver Thoughts, Multiple Myeloma on Jan 11th, 2012
“All doctors have proven to me is that they are good enough students to get through med school.” – Lori Puente Another favorite of mine that my friend and former mentor used to say to me was, “Remember, they are ‘practicing’ medicine.” I don’t mean to be a doctor basher. I have many friends who […]
Posted in Caregiver Thoughts, Misc, Multiple Myeloma on Dec 31st, 2011
“Life is like a game of cards. The hand that is dealt you represents determinism; the way you play it is free will.” – Jawaharal Nehru It’s hard to believe yet another year has gone by. It has been a good year for us, personally. Not so true for others and then some have done exceedingly […]
Posted in Caregiver Thoughts, Multiple Myeloma on Dec 26th, 2011
“Open collaboration is critical for driving innovation…” – Open Source Quote This video hit the MM community as I was traveling for a long awaited cruise celebrating 30 years of marriage with my husband Dave, who has MM. It has taken me awhile to finally get it up here for those of you that might […]
Posted in Multiple Myeloma on Dec 26th, 2011
“Elderly patients with multiple myeloma strive for upfront therapy that will extend their lives,” said Karen Ferrante, M.D., Chief Medical Officer, Millennium. “Today’s VELCADE data confirmed the sustained clinical benefits, including overall survival and complete response that VELCADE provided in patients with previously untreated MM.” Peter, a member of the MM ListServ (moderated by Beth […]
Posted in Multiple Myeloma on Dec 26th, 2011
Rajkumar tackles defining “cure”. A five part video series Discussing the topic “Is Myeloma Curable” were Bart Barlogie, M.D., Ph.D., director of the UAMS Myeloma Institute for Research and Therapy and professor of medicine in the UAMS College of Medicine, and S. Vincent Rajkumar, M.D., professor of medicine at the Mayo Clinic in Rochester, Minn. I haven’t […]
