Posted in Multiple Myeloma on Dec 26th, 2011
Our Mission: “To accelerate curative therapies for multiple myeloma and related disease entities through innovative translational research and outstanding patient care.” – Myeloma Institute for Research and Therapy Myeloma Institute doctors presented research findings at the annual meeting of the American Society of Hematology (ASH), December 10-13. You can view ASH Abstracts at http://ash.confex.com/ash/2011/webprogram/start.html (search […]
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“Information is not knowledge.” – Albert Einstein I have noticed there are those who are very knowledgable about Multiple Myeloma and there are those who have information, and then there are those who have a very superficial understanding. I have also noticed that sometimes it’s the patient, sometimes the caregiver, but rarely is it both […]
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“Physical strength is measured by what we can carry; spiritual by what we can bear.” – Unknown When I started this blog, it was partly my own very personal need to heal from my experience of moving from sheer terror to triumphant regaining of our life. Albeit a different life than the one we had, but in […]
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“New and wonderful, ‘Myeloma Blessings’ came into my life last night!” – Lori Puente Wow! I have come to embrace and truly LOVE the chance encounters I have in my daily life. It’s almost as if, “who or what will come into my life today?” Will they be for me? Or will I be for […]
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“I wouldn’t be alive except for you and Nick!” – Bruce Bertsche “No… it’s because your wife Jan called me.” – Lori This was the cute little banter Bruce and I would have from time to time when others were around and he would tell them of his story and how he got to Arkansas […]
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Posted in Misc, Multiple Myeloma on Oct 20th, 2011
“Research is formalized curiosity. It is poking and prying with a purpose.” – Zora Neale Hurston Cancer expert Kenneth C. Anderson, MD, from Dana-Farber Cancer Institute discusses bone marrow transplantation techniques and other related therapies used for treating multiple myeloma in this video from the National Comprehensive Cancer Network (NCCN), a not-for-profit alliance of 21 […]
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“Be careful about reading health books. You may die of a misprint.” – Mark Twain Margaret over at Margaret’s Corner has written a small article clearing up the differences between Tumeric and Cucurmin when used for improving one’s health situation, which are often used interchangeably (by me as well!). She presented it in response to […]
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Dave: “What do they say?” Lori (reading test reports): “Well, they say you get to live another 6 months.” Laughter from Dave, the Nurse, and our new Doc. All went well, as we expected. Dave is about as low risk as you can be and still have MM. We are monitored closely at home and […]
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“One day at a time–this is enough. Do not look back and grieve over the past for it is gone; and do not be troubled about the future, for it has not yet come. Live in the present, and make it so beautiful it will be worth remembering.” – Unknown I read once that depression […]
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Posted in Caregiver Tips, Multiple Myeloma on Sep 19th, 2011
“The human spirit is stronger than anything that can happen to it.” -C.C. Scott Here’s the link to the blood cancer channel – and to my “Food Portion Trick” on WEGO Health TV’s new health channel. Another bright idea to bring patients and caregivers together online. 0
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“When something bad happens you have three choices. You can either let it define you, let it destroy you, or you can let it strengthen you.” – Unknown I was having a tough morning, waking up with the realization that my beloved Kip is gone. No more perky head popping up to greet me when my feet roll […]
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“It is easy to get a thousand prescriptions but hard to get one single remedy.” – Chinese Proverb Arnold Goodman, MD, MM patient, and relatively new columnist over at The Myeloma Beacon has written a very nice article today that you should take a look at. I’ve talked a bit in the past about how […]
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“Every day may not be good, but there’s something good in every day.” – Author Unknown A terrific post over at The Myeloma Beacon from one of my favorite MM Warriors and Writers, Sean Murray. Article Here I was privileged to meet Sean Murray in the flesh, in Arkansas. And of course as I began […]
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“You have to accept whatever comes and the only important thing is that you meet it with courage and with the best that you have to give.” – Eleanor Roosevelt What a GREAT day I had yesterday reading about some Multiple Myeloma Caregiver friends having great news to report. First, Jan, to your left there, wearing one […]
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“Media, the plural of mediocrity.” – Jimmy Breslin Well the “chaos merchants” are at it again. Margaret has taken a pretty nice stab at the hub-bub. Don’t get me wrong, I don’t care what it is if they can get serious results and relief. But what I really liked about Margaret’s article actually had little to […]
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“Everyone has a story, and Dave and I have ours.” – Lori Puente, Myeloma Caregiver I recorded “Our Story” for those of you interested in hearing it. It is “the talk” I give when asked, to offer hope and courage. It’s about 10+ minutes. I hope the link works for you. Love, Lori 0
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Posted in Multiple Myeloma on Aug 24th, 2011
“….it’s the durability of remission that matters.” – Bart Barlogie, Director of the Myeloma Institute for Research & Therapy, UAMS International Myeloma Workshop 2011 HIGH-RISK ENTITIES OF MYELOMA: FROM BIOLOGY TO TREATMENT Dr. Barlogie – What is GEP-defined high-risk Myeloma? Bart Barlogie, MD Myeloma Institute for Research and Therapy University of Arkansas for Medical […]
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Posted in Misc, Multiple Myeloma on Aug 23rd, 2011
“The only thing that saves us from the bureaucracy is its inefficiency.” – Eugene McCarthy OUR SAGA of sending Dave’s lab samples to Arkansas has finally, I hope, found it’s path from Dave’s blood/urine collection, to centrifuge, to shipment, to a lab somewhere on the campus of UAMS! As some of you may remember in past posts, […]
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“Quality of Life (QoL) is a phrase used to refer to an individual’s total wellbeing. This includes all emotional, social, and physical aspects of the individual’s life. However, when the phrase is used in reference to medicine and healthcare as Health Related Quality of Life, it refers to how the individual’s wellbeing may be impacted over time by a disease, a disability, or a disorder.” – Wikipedia I don’t […]
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Posted in Misc, Multiple Myeloma on Aug 11th, 2011
“Every truth passes through three stages before it is recognized. In the first it is ridiculed, in the second it is opposed, in the third it is regarded as self-evident.” – Arthur Schopenhauer Burzynski, The Movie The Documentary Channel David Emerson’s Story, A MM Patient You can watch it FREE HERE. Or HERE at YOUTUBE […]
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