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Category Archive for 'Multiple Myeloma'

“Soul-mates are people who bring out the best in you.  They are not perfect but are always perfect for you.” – Unknown Something that is very important for us as caregivers and not so easy to do, is to remember, always, we are the support for the patient, but the patient needs to lead. While […]

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“Myeloma may be what takes my life in the long run. But I’m not going to let it happen today.”  – Terry Purdom Ok, you simply must watch this great video from Terry Purdom! (hat tip: David at workingwithme.com) Terry has Multiple Myeloma, diagnosed quickly in 2004. He loves Harleys and is spreading Hope about […]

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“Drugs are not always necessary.  Belief in recovery always is.”  – Norman Cousins You’re going to start treatment. You are going to be receiving Melphalan as one of the chemotherapy cocktail drugs. This is what you need to know. Sadly, it is just one more thing YOU have to be proactive about – maybe. Some nurses, […]

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“Somewhere, something incredible is waiting to be known.” – Dr. Carl Sagan An article over at The Myeloma Beacon by Dr. Raijkumar, a researching physician in Multiple Myeloma, who graciously contributes to The Beacon from time to time, has written about the newer drugs not yet available broadly, but available, that are showing promise in […]

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“My cancer scare changed my life.  I’m grateful for every new, healthy day I have. It has helped me prioritize my life.”  – Olivia Newton-John You’ve just learned you have cancer and it is called Multiple Myeloma. Most of you will have never heard of it. Most of you will have had symptoms for sometime […]

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“There is good news tonight” – Gabriel Heatter Well, we have completed our tests and consultations in Little Rock. What should have been a 6 month check was an 8th month check due to some moving around of the schedule as our doctor was unexpectedly called away. Dave continues in Complete Remission with all lesions […]

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“Promise me you’ll always remember: You’re braver than you believe, and stronger than you seem, and smarter than you think.”  – Christopher Robin to Pooh (A.A. Milne) When Dave and I were originally scheduled to go to Little Rock in February, we were disappointed we would miss Jan & Bruce. Then Bruce was out of […]

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Drugs…Forbes Article

Short and sweet. I put it up because it mentions MULTIPLE MYELOMA and Geraldine Ferraro. (hat tip Pat Killingsworth at Living With Myeloma) Research costs A LOT! Litigation costs A LOT! It takes a LONG TIME! And then we are a small group, relatively speaking. Although I often feel like Myeloma is EVERYWHERE! I want them to […]

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“He who has health, has hope. And he who has hope, has everything.” – Proverb See Newer Posts Below… 0

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  “Most of our obstacles would melt away if, instead of cowering before them, we should make up our minds to walk boldly through them.” – Orison Swett Marden I wrote this piece for The Myeloma Beacon. I hope it helps those of you struggling with chronic pain, which can be so debilitating, both physically […]

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My Blog Roll

“Fill your paper with the breathings of your heart.”  – William Wordsworth There was a time when there were few bloggers writing about Myeloma, in the not too distant past. I was one of the few caregivers who started to write about my experience, and then as I’ve mentioned recently, there was Susie Hemingway, Caregiver […]

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“Take small steps and celebrate the successes.” – Sarah’s minister friend Sarah, a Myeloma caregiver has been dealing with the often overwhelming onslaught of Multiple Myeloma entering her life. She has been blogging about her journey and has a delightful honesty about her struggles and her successes. 0

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“Carpe diem! Rejoice while you are alive; enjoy the day; live life to the fullest; make the most of what you have.” – Horace Beth Morgan’s Myeloma Listserv has some wonderful folks who are intimately connected with Multiple Myeloma. This recently went out by a Myeloma survivor that was incredibly impressive to me, and I […]

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“We were prepared for death, we were not prepared for disability.” – Lori Puente A good article (hat tip, Pat Killingsworth) at Everyday Health talking about the high cost of treating Multiple Myeloma. Beth Morgan, who runs the Myeloma ListServ (Thanks Beth!) offers some her experience with the high costs she has encountered. 1

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“It is now clearer than ever that the human species is in the midst of a war with the microbial world – a resilient foe that will never be completely defeated.” Anthony S. Fauci, Journal of the American Medical Association, October 20, 2004 Germs! Germs! Germs! They are EVERYWHERE! We share our world with all […]

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“The secret of health for both mind and body is not to mourn for the past, worry about the future, or anticipate troubles, but to live in the present moment wisely and earnestly.” – Buddha When I wrestled with the idea of starting a public blog, vs. the Caring Bridge site I had written on […]

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Geraldine Ferraro was a pioneer in many areas, just one of them was Multiple Myeloma. A couple of weeks ago there was a story in the news on Ms. Ferraro and I wondered at the time how she was doing with her Myeloma. It would seem now, that it was a bit of a forewarning […]

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Hopeful Messages

“Anyone can give up, it’s the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that’s true strength.” – Unknown Pat Killingsworth has a nice post today at Living With Multiple Myeloma talking about his recent presentation in Atlanta and then the subsequent […]

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“Every man dies – Not every man really lives.” – William Ross Wallace As we have all watched and heard about the disaster in Japan of such proportion its hard to get my mind around just how devastating this disaster has been in its size and scope. Intellectually I think I get it, but I […]

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“There are things I can’t force. I must adjust. There are times when the greatest change needed is a change of my viewpoint.” – Denis Diderot You know I’m all about changing your point of view when faced with difficulties. It is really a miraculous ability to have and one I have worked on my […]

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