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Category Archive for 'Our Life'

“We feel free when we escape – even if it be but from the frying pan to the fire.” – Eric Offer Well, not precisely to the fire, but a new routine that will feel arduous over time. It feels good to be OUT of the hospital and back at our Goodness Village Home Away […]

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“Winners never quit and quitters never win.” –Vince Lombardi Dave continues to improve daily with his femur fracture. His PT person is pushing him within reason and chats about the why and what of it. She’s very encouraging. Today she said when he said he wasn’t doing 30 of each exercise, “If you were doing […]

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“Anybody can sympathize with the sufferings of a friend, but it requires a very fine nature to sympathize with a friend’s success.” ― Oscar Wilde Years ago, when I wrote my opinion piece at The Myeloma Beacon on our incredible success with HBOT (Hyperbaric Oxygen Therapy), it garnered considerable attention from those in that world. It […]

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“…every gift is exactly that, a gift.” – Maya Angelou What a lovely weekend and then extended two days with our daughter and her new husband here in Little Rock! Just what the caregiver ordered for Dave (and me!). I was so heartened when I called her and just casually said, “Hey! Any chance you […]

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“Don’t be pushed around by the fears in your mind. Be led by the dreams in your heart.” ― Roy T. Bennett, The Light in the Heart There will probably be a lot of “MishMash Musings” in the coming weeks leading up to Dave beginning his Abecma Car T Therapy, currently scheduled for Halloween. Perfect if […]

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“And in the end, it’s not the years in your life that count. It’s the life in your years.” – Abraham Lincoln Another stellar day here in Little Rock yesterday. We managed to get the car registered, and so now we are 100% legal! One of my fellow apartment dwellers gave me the “better” Motor […]

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“You’re always on your way somewhere. The key is: find a way to be happy wherever you now are on your way to where you really want to be. (We’re speaking of the state of being you want.) It does not matter where you are; where you are is shifting constantly – but you must […]

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“Look for what is good and you will certainly find it.” – Anne Perry We have been on yet another unexpected journey. I’ve been posting snipets at my companion FB page called Riding the Wave (you can search Multiple Myeloma too and it should come up.) My blog has been very quirky and weird over […]

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It’s been too long!

  Oh, the adventures we’ve enjoyed since the years I’ve blogged about our journey in Myelomaville. Some wonderful and some not so much. Typical to life in general, to be honest. Though with Myeloma, we can get immersed in everything through that lens, rightly or wrongly. No judgment here! And in these difficult times of Covid […]

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  “The simplicity of it is, we’ve been living our life. Apparently so have many others. It’s a positive.” – Lori Puente, Myeloma Caregiver  I was noticing a few things in my stats and so like following bread crumbs, it took me to old haunts. Blogs. Websites. I began to wonder, “Oh yeah, how are […]

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    “Change is the only constant, whether it’s in music, culture, dance or fashion.” – Sonu Nigam     First, I’ve missed you guys, although many of us have migrated over to FB and the various groups there that offer us information, hope, and inspiration.  I’ve felt for some time, as you may recall, […]

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Weddings and …

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So Much Good Stuff!

“What you spend years building may be destroyed overnight. Build anyway.” It surely has been a long time since I have posted! Some of us have stayed in contact on FaceBook in one of the MM groups and so I haven’t felt overly disconnected, but disconnected nonetheless. What can I say, but we are doing extremely […]

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“A piece of me goes with them.” – Lori Puente We lost another giant soul in Myelomaville last week (Hanna – Margaret’s heartfelt tribute). Some of us knew it was coming, but it still hits you hard. Every time this happens I feel sadness and meloncholy. Each time someone relapses and goes back for more […]

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Musings

“There are things we don’t want to happen but have to accept, things we don’t want to know but have to learn, and people we can’t live without but have to let go.” – Unknown First of all, we had another stellar report from our recent post maintenance therapy check up in Arkansas. David continues […]

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Monterey Excursion

“The journey not the arrival matters.” –  T.S. Eliot Dave and I went on a road trip to Monterey, CA. So for weeks we were trying to get away to just DRIVE in the new/used “CaliCar” we recently got. Top down, destination known or unknown, just hit the road jack! Weekend after weekend was obligated to […]

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MIA, AWOL, APB!!!!

“Preaching for life changes requires far less information and more application. Less explanation and more inspiration.” — Andy Stanley MIA: Missing in Action AWOL: Absent With Out Leave APB: All Points Bulletin I didn’t intend in any way shape or form to be absent from you for so long! I have much to catch up on […]

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“Let no one think that flexibility and a predisposition to compromise is a sign of weakness or a sell-out.” – Paul Kagame The two things that helped me through this ordeal (and other challenges in my life) is flexibility and adjusting my point of view. Karen touched on this in her insightful comment on my last […]

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“Superman’s not brave. You can’t be brave if you’re indestructible. It’s every day people, like you and me, that are brave knowing we could easily be defeated but still continue forward.” – Unknown In my last post regarding Dave’s exercise update I mentioned that our trainer is encouraging Dave to revitalize and renew his love for […]

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“I have to exercise in the morning before my brain figures out what I’m doing.”  – Marsha Doble I thought you might like an update on Dave’s progress. As the week wore on heading to his first day, his confidence began to wane. My little humorous quips were met with distress and annoyance. I toned […]

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