“He who has health, has hope. And he who has hope, has everything.” – Proverb
See Newer Posts Below…
I would really love it if those of you long term survivors (beyond three years generally), those who have beat the odds so far, would chime in and make yourself known. You are so inspirational to those of newly on this Myeloma journey. You bring hope beyond measure. Just tell us how long since your diagnosis and feel free to add anything more about yourself and/or your treatment in the comment section below this post.
“Once you choose hope, anything’s possible.” – Christopher Reeve
Sandra-
There is so much support for you through this and so many other wonderful blogs. Although it is very frightening and overwhelming, please know that you are not alone. Many people will walk along this journey with you. My husband was diagnosed in January, 2010 and I remember the reeling that takes place in your mind. I would be happy to communicate with you more if you’re up to it; I know at the beginning, there’s so much to process. If you’re interested, let me know and I will give you my email address. Lots of hugs-
Rene
My husband has just been diagnosed with multiple myeloma. We are in the waiting stage. He has had his bone marrow biopsy and we are waiting to get the results of that so that we will know what stage it is and then get a treatment plan.
I was searching the web for information and support and came across your blog.
We were shocked to get the diagnosis and it’s very scary but we are slowly trying to come to grips with what we are dealing with. Thank you for sharing your experience.
The Huntsman goes off the first transpant. So, having said that, MM undetecable since Dec 07, had first transplant Feb 08. Still in CR
Congrats to everyone
Doug
We are running up on 3 years since dx (June 2008) and currently 18 months since finishing Tandem SCTs. We too feel really great about it all. Dave was undetectable at the start of SCTs with the oral chemo, so we could say we have been in at least VGPR and then Remission for 30 months. We are off to ARK for check up next week.
Hi Lori-
Not “long term”, but we’re hopeful! Dominic was tested yesterday for his M-SPIKE. We’ll find out in a couple of weeks if he’s still in COMPLETE REMISSION/Response 21 months post Stem Cell Transplant! We couldn’t be any happier. Life is good, thus far! Have a great weekend, kiddo.