“Every day may not be good, but there’s something good in every day.” – Author Unknown
A terrific post over at The Myeloma Beacon from one of my favorite MM Warriors and Writers, Sean Murray. Article Here
I was privileged to meet Sean Murray in the flesh, in Arkansas. And of course as I began to read his Myeloma Musings, I found a kindred spirit. If you’ve read my blog, you would certainly see the similarity in attitudes and viewpoints on life, family, and living in Myelomaville.
Hi Paula, I like the Courtyard Marriott in the River Market. I haven’t stayed here, but many have and love it. Rosemont Bed and Breakfast: http://www.rosemontoflittlerock.com/
These aren’t the cheapest, but reasonable. I like to try to enjoy myself in LR when we are there for tests. Though often, I’m just hanging out talking to patients/caregivers!
That’s not three, but there you have it. 🙂
I hope things are going well for Terry also.
Dear Lori
My deepest sympathy for your loss of Kip. Like you, my wonderful little Abby passed several years ago and I still tear-up today. Fortunately we can remember sooo many the joyful times these wonderful creatures brought to families. It’s been the wake-up and get-home moments that remain on my heart. On the other hand…
I have made a date for the 3rd of November to return. We’ve stayed at several places but just wanted to know if you have any top 3 preferences…and also
The reason I picked this place to send you a reply is because I hope and pray Terry is feeling more comfortable as she pilots through MMville. Just let her know we are the wind to help her through…
Best wishes and God bless your day
Paula
Dear Terry,
Wow! You really are very new in “Myelomaville” as Sean Murray dubbed it some time back. First, I’m very sorry that you are dealing with MM. Second, it is no longer a death sentence and three, check out some of my stuff on Author’s Picks and then in the Resources tab at the top. You hopefully have some time to get some multiple opinions on whether you want to use novel agents, single SCT or tandem. You should, once stable, take the time to get multiple opinions, even if you like the first guy. My “Newly Diagnosed” post in the Author’s picks has a good set of questions to go over with your doctors as you are deciding how to address it. Good luck and let us know how you are doing. There is a very good MM support group on Facebook now if you are so inclined.
Hi Lori, I am new to MM. Dx on 8/10/11. My GP thought it was anemia! Needless to say I am an emotional cauldron of despair, self pity, etc. I have seen your posts on the Myeloma Beacon and I like your positive attitude, spunk and spirit. They are still staging my MM. I think it is early as my bone survey is normal, etc. I am also going to be evaluated at the University of Pennsylvania which has a top notch myeloma section. The local hematologist/onc who diagnosed me seems unfocused on my case, etc. I have good health insurance so might as well use it. I hope you and your husband are well and thank you for helping all of us stricken by this ^%$#*& condition. Best wishes. Terry from NJ