A Caregiver's Inspirational Journey Through Cancer
Posted in Abecma Car T, Multiple Myeloma on Feb 22nd, 2022
The media we did for UAMS/MIRT on the CAR-T. Click the link to take you to the story. First Myeloma Center Patient Receives Revolutionary New Therapy, Responds Well 0
Posted in Abecma Car T, Caregiver Thoughts, Multiple Myeloma on Feb 22nd, 2022
“Success is not final, failure is not fatal: it is the courage to continue that counts.” – Winston Churchill Wow, what a wild ride we keep having. Good stuff, challenging stuff, crazy stuff, and ARE YOU KIDDING ME STUFF! Every once in a while, I say, “Can we just go back to Little Rock?” 1
Posted in Abecma Car T, Caregiver Thoughts, Misc, Multiple Myeloma on Nov 10th, 2021
“Be strong enough to face the world each day. Be weak enough to know you cannot do everything alone.” – Author Unknown It’s so much EASIER when you share an arduous journey with others who are in your boat. I’ve often written about the whole “misery loves company” saying. What does it mean exactly? I […]
Posted in Abecma Car T, Caregiver Thoughts, Multiple Myeloma, Our Life on Nov 8th, 2021
“We feel free when we escape – even if it be but from the frying pan to the fire.” – Eric Offer Well, not precisely to the fire, but a new routine that will feel arduous over time. It feels good to be OUT of the hospital and back at our Goodness Village Home Away […]
Posted in Abecma Car T, Caregiver Thoughts, Multiple Myeloma on Nov 7th, 2021
“Strive for continuous improvement, instead of perfection.” – Kim Collins It is common in the Myeloma community to say “It’s a marathon, not a sprint!” This is so true. Changing Dave’s antibiotic did the trick to stopping the cough and getting a STELLAR night’s sleep for both of us. I barely woke up when the […]
Posted in Abecma Car T, Caregiver Thoughts, Multiple Myeloma on Nov 4th, 2021
“The voyage was uneventful.” – W.E. Bowman, Author And when a person has both knowledge and a heart full of love and an ear ready to listen and a hand willing to help others, it is a genuinely GOLDEN experience! A shout out to our two Car T nurses on Floor 7 in the F […]
Posted in Abecma Car T, Caregiver Thoughts, Kids, Misc, Multiple Myeloma, Our Life on Oct 20th, 2021
“Winners never quit and quitters never win.” –Vince Lombardi Dave continues to improve daily with his femur fracture. His PT person is pushing him within reason and chats about the why and what of it. She’s very encouraging. Today she said when he said he wasn’t doing 30 of each exercise, “If you were doing […]
Posted in Abecma Car T, Caregiver Thoughts, Kids, Our Life on Oct 13th, 2021
“…every gift is exactly that, a gift.” – Maya Angelou What a lovely weekend and then extended two days with our daughter and her new husband here in Little Rock! Just what the caregiver ordered for Dave (and me!). I was so heartened when I called her and just casually said, “Hey! Any chance you […]
Posted in Abecma Car T, Caregiver Thoughts, Multiple Myeloma on Oct 5th, 2021
“Love and compassion are necessities, not luxuries. Without them, humanity cannot survive.” – Dali Llama Every day here, I’m meeting and interacting with people in a profound and fun way. It’s like I’m in one giant neighborhood as I meander around from venue to venue. Often, I’m chatting with them while making a purchase or […]
Posted in Abecma Car T, Caregiver Thoughts, Misc, Multiple Myeloma on Oct 1st, 2021
“Sometimes, the best way to help someone is to just be near them.” – Veronica Roth, Divergent Today I witnessed one of those moments between another couple in the throws of the journey of Myelomaville. My assessment was they are at the beginning of their journey, and I so wanted to go over and say, […]
Posted in Abecma Car T, Caregiver Thoughts, Misc on Sep 26th, 2021
“Gratitude is happiness doubled by words.” – G.K. Chesterton There is a comfort in routine and things predictable when dealing with our Myeloma crisis. Knowing when we need to go into the clinic and knowing we can just chill until we do. Today I ran to the Vitamin Shoppe in N Little Rock. Then back […]
Posted in Abecma Car T, Caregiver Thoughts, Misc, MM Chrono Journey, Multiple Myeloma on Sep 23rd, 2021
“Turn off the news and get out in the world. It is full of wonderfulness and humanity.” – Lori Puente What a whirlwind this particular episode in our reluctant Myelomaville adventures. Our original plan was that Dave would come out and get his T Cells collected on September 13th. (Well really mid-August, but the pharma […]
Posted in Caregiver Thoughts, Multiple Myeloma on Jan 15th, 2021
“Courage is fear holding on a minute longer.” – Gen. George S. Patton We have had bits of respite here and there after Dave’s relapse in year 5 or somewhere in that time frame. Then things just started being troublesome. Little annoying little things that Dr. VanRhee was watching and suspicious of. Each time, his […]
