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Tag Archive 'postaweek2011'

Mission: to provide effective mediation and arbitration services to patients to remove obstacles to healthcare including medical debt crisis, insurance access issues and employment issues for patients with chronic, debilitating and life-threatening illnesses. 0

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Maven Semantic Medical Database – Beta

“Somewhere, something incredible is waiting to be known.” – Carl Sagan Wow! How things have changed for us dealing with Myeloma. For newly diagnosed patients, while we, who have been before you, are sorry for what you are facing now, we are really happy and sometimes envious of all the bloggers, The Myeloma Beacon, great […]

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“Do what you can, with what you have, where you are. – Theodore Roosevelt “What do you do to keep yourself in good shape and spirits as a caregiver, and what advice would you offer other caregivers about caring for themselves?” – a Q&A question at a recent talk I gave and a great question! 0

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Myeloma Laughs…

“We don’t laugh because we’re happy, we are happy because we laugh.” – William James (1842-1910) Disclaimer: If you are new to cancer or Myeloma, this post will not be for you. If curiosity gets the better of you and you keep reading, I hope that in your difficulties as a newly diagnosed patient you won’t […]

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“Bureaucracy is the death of all sound work” – Albert Einstein HIPAA, The Health Information Portability and Accountability Act of 1996, was enacted as a broad Congressional attempt at incremental healthcare reform. The Administrative Simplification section of HIPAA is designed to improve the efficiency and effectiveness of the healthcare system by standardizing the electronic data […]

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Huntsman Cancer Institute

Huntsman Cancer Institute’s Multiple Myeloma Program “Hope Through Discovery” Link here Jon Huntsman, a self made billionaire and author of “Winners Never Cheat”, funded and created the Huntsman Cancer Institute in Salt Lake City, Utah at the University of Utah. Mr. Huntsman after battling his own cancer put his money where his heart is, as […]

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“In nothing do men more nearly approach the gods than in giving health to men.”  – Cicero Most of you know by now the difference in an Autologous stem cell transplant and a Allogenic stem cell transplant. The Auto is using your own pre-collected stem cells to boost your wiped out immune system to help […]

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“Opportunities to find deeper powers within ourselves come when life seems most challenging.” – Joseph Campbell As I alluded to in a recent post “Prayerful Thoughts”, two of my myeloma friends are struggling at the moment. One chose to manage his disease and has done it quite well for some time. Another who had failed […]

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“… a growing body of scientific evidence is building the case that the spiritual balance created by yoga provides proven health benefits.” – from article (link here) Yoga is becoming very “mainstream”. It is growing in popularity around the world. Yoga studios are popping up all over the place and classes are offered routinely in local […]

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“If you have learned how to disagree without being disagreeable, then you have discovered the secret of getting along — whether it be business, family relations, or life itself.” – Bernard Meltzer While on social cancer websites, list servs, private conversations, emails, etc. I have “watched” or been involved in the continuing debate about positive […]

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“Respect for ourselves guides our morals; respect for others guides our manners.” – Laurence Sterne I have had very personal relationships good and bad with physicians over the years. It was a rocky road for me. I didn’t like them generally, the arrogance mostly. Their attempts at intimidation of their patient as I viewed it. […]

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The Burgundy Café

“In my day, socializing was going out to a party to meet people. Now, socializing is taking place via networked devices.” – Zach Nelson 1

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Update on Dave…

“In three words I can sum up everything I’ve learned about life — It goes on. —Robert Frost” This photo was taken in May 2007, a year before Dave’s MM diagnosis on the lovely day of our youngest’s HS Graduation. This May she will graduate from College! Good news. Dave has had a sudden burst […]

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What Are Grandmas For?

What Are Grandmas For? Grandmas are for stories about things of long ago. Grandmas are for caring. about all the things you know…. Grandmas are for rocking you. and singing you to sleep.. Grandmas are for giving you. nice memories to keep…. Grandmas are for knowing. all the things you’re dreaming of…. But, most importantly […]

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Protein Powder

“He that takes medicine and neglects diet wastes the skills of the physician.” – Chinese proverb When my mother was ill with cancer and found it difficult to eat “enough” to satisfy my concerns, I began a fervent search for a supplemental way to provide some protein into her diet. 0

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“The human spirit is stronger than anything that can happen to it.”  – C.C. Scott Two of my myeloma buddies aren’t doing so well at the moment. Their numbers are rising, there is concern. One I’m very close to and have garnered deep affection for. The other a blogger I’ve never met and have come […]

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Life Notes

Ronald Reagan, Jr. recently said, that he shadowed his father for a day during Presidential duties in his second term. Because his father had notecards while making phone calls, Ron, Jr. found this “troubling”, and as a result of that observation, has claimed that his father had Alzheimer’s in his second term. – Oh dear… […]

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“I learn from my patients each and every day… I feel thankful for what they give me.” – Dr. Anaissie I’ve not met Dr. Anaissie, but have heard of him and always in high regard. If you have, feel free to leave your comments about your experience. 0

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“If it weren’t for the fact that the TV set and the refrigerator are so far apart, some of us wouldn’t get any exercise at all.”  – Joey Adams We all know that exercise is important for our physical well-being and our mental & spiritual well-being. Dave was a champion racquetball player before he was […]

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Nick

“Normal marrow and other thoughts, including BBs opinion on the Revlimid scare” Nick’s Myeloma Blog Nick has written another in-depth, thoughtful, funny, great post. If you don’t follow Nick, and you have MM, you might like too. For those of you worried about Revlimid and secondary cancers, I think you would appreciate this post. And […]

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