A Caregiver's Inspirational Journey Through Cancer
Posted in Caregiver Thoughts, Misc, Multiple Myeloma, Our Life on Jul 30th, 2012
“Superman’s not brave. You can’t be brave if you’re indestructible. It’s every day people, like you and me, that are brave knowing we could easily be defeated but still continue forward.” – Unknown In my last post regarding Dave’s exercise update I mentioned that our trainer is encouraging Dave to revitalize and renew his love for […]
Posted in Caregiver Thoughts, Misc, Multiple Myeloma on Mar 7th, 2012
An e-patient (also known as Internet patient, or Internet-savvy patient) is a health consumer who uses the Internet to gather information about a medical condition of particular interest to them, and who use electronic communication tools (including Web 2.0 tools) in coping with medical conditions. The term encompasses both those who seek online guidance for their own ailments and […]
Posted in Caregiver Thoughts, Multiple Myeloma on Jan 21st, 2012
“Before I even knew what we would do, what the treatment would be, or it’s outcome, I had to get Dave’s head in the game!” – Lori Puente There is a wonderful article over at The Myeloma Beacon, by Kevin Jones where he talks about the battle between him and his MM. It has garnered […]
Posted in Multiple Myeloma on Jan 13th, 2012
“If we knew what it was we were doing, it would not be called research, would it?” – Albert Einstein Recently there was a study about treating those MM patients that were historically in the “wait and see” mode. As you can imagine folks were a bit rattled (an understatement). Kind of like how we feel […]
Posted in Caregiver Thoughts, Multiple Myeloma on Sep 13th, 2011
“It is easy to get a thousand prescriptions but hard to get one single remedy.” – Chinese Proverb Arnold Goodman, MD, MM patient, and relatively new columnist over at The Myeloma Beacon has written a very nice article today that you should take a look at. I’ve talked a bit in the past about how […]
Posted in Caregiver Thoughts, Misc, Multiple Myeloma on Sep 6th, 2011
“Every day may not be good, but there’s something good in every day.” – Author Unknown A terrific post over at The Myeloma Beacon from one of my favorite MM Warriors and Writers, Sean Murray. Article Here I was privileged to meet Sean Murray in the flesh, in Arkansas. And of course as I began […]
Posted in Caregiver Thoughts, Multiple Myeloma on Aug 5th, 2011
“There is no medicine like hope, no incentive so great and no tonic so powerful as expectations of something better than tomorrow.” – Orioson Swett Marden Great article, “The Role of Autologous Stem Cell Transplant in Multiple Myeloma” over at The Myeloma Beacon authored by S. Vincent Rajkumar, M.D. (a professor of medicine at the Mayo Clinic […]
Posted in Caregiver Thoughts, Multiple Myeloma on Jul 16th, 2011
“Fatigue is a daily lack of energy; an unusual or excessive whole-body tiredness, not relieved by sleep.” – Chemocare.com A great article at The Myeloma Beacon on a recent study (by Nurses, of course!) regarding fatigue. As I was reading this article, which goes a bit round and round, I was feeling a bit validated […]
Posted in Misc, Multiple Myeloma, Our Life on Jul 8th, 2011
“The doors we open and close each day decide the lives we live.” – Flora Whittmore I haven’t had much to espouse about on the MM front, though that is not to say that a lot doesn’t continue to happen – good and bad. I enjoyed Sean Murray’s recent posting at The Beacon. Just to validate […]
Posted in Multiple Myeloma on Jul 1st, 2011
“Twenty-one percent of patients required a second course of these stem-cell mobilizing agents because they failed to collect the target collection number of four million stem cells per kg.” Myeloma Beacon article here I admit I get VERY FRUSTRATED when I see articles like this that I know generally, doctors out there, occasionally treating a […]
Posted in Caregiver Thoughts, Misc, Multiple Myeloma, Our Life on May 9th, 2011
All is well, no worries… Sarah chided me (rightly so) for using a sensational headline! Sorry. It’s just we never really are too far from “Myelomaville” and I have been ‘away’ doing other fun and meaningful things in my life of late… a good thing. Thus, ‘Back to Myelomaville’ to check in and write… 2
Posted in Multiple Myeloma on Apr 16th, 2011
“Somewhere, something incredible is waiting to be known.” – Dr. Carl Sagan An article over at The Myeloma Beacon by Dr. Raijkumar, a researching physician in Multiple Myeloma, who graciously contributes to The Beacon from time to time, has written about the newer drugs not yet available broadly, but available, that are showing promise in […]
Posted in Caregiver Tips, Multiple Myeloma on Apr 7th, 2011
“Most of our obstacles would melt away if, instead of cowering before them, we should make up our minds to walk boldly through them.” – Orison Swett Marden I wrote this piece for The Myeloma Beacon. I hope it helps those of you struggling with chronic pain, which can be so debilitating, both physically […]
Posted in Misc on Apr 5th, 2011
“Service to others is the rent you pay for living on this planet.” ― Marian Wright Edelman Another great post over at The Myeloma Beacon by Sean Murray who blogs on Myeloma Youreloma. Sean has a delightful family and dear friends and I enjoy the generosity of his sharing snippets into his life as he manages his […]
Posted in Multiple Myeloma on Mar 2nd, 2011
“Just living is not enough. One must have sunshine, freedom, and a little flower. – Hans Christian Andersen Another fabulous post by Sean Murray of Myeloma Youreloma over at The Myeloma Beacon. Sean’s column is always worth waiting for. You will enjoy this one a great deal. So in case you need a ‘teaser’, do you […]
Posted in Misc, Multiple Myeloma on Jan 24th, 2011
“In my day, socializing was going out to a party to meet people. Now, socializing is taking place via networked devices.” – Zach Nelson 1
Posted in Misc on Jan 11th, 2011
An article I penned, posted over at The Myeloma Beacon on our experience with Hyperbaric Oxygen Treatment (HBOT) and Dave’s Stem Cell Collection. 0
Posted in Caregiver Thoughts, Misc, Multiple Myeloma on Dec 22nd, 2010
“One person caring about another represents life’s greatest value.” – Jim Rohn Lou writes a column called Birds in Spring for The Myeloma Beacon. He has such wonderful insights in many areas and its always a pleasure to read his latest musings. Caregivers are such an integral part of a Myeloma patient’s journey. His acknowledgement is […]
Posted in Multiple Myeloma on Dec 17th, 2010
“Overall, there is a statistically significant advantage to early stem cell transplantation in patients under the age of 65… ” – Dr. Siegel Another great article at The Myeloma Beacon. There is still much analysis to do on this issue, but its good to see that it is going on, vigorously, so that newly diagnosed patients […]
Posted in Caregiver Thoughts, Multiple Myeloma on Dec 3rd, 2010
The Myeloma Beacon (click link) published another great article today by Dr. Vincent Rajikumar, (a professor of medicine at the Mayo Clinic in Rochester, Minnesota. His research focuses on clinical, epidemiological, and laboratory research for myeloma and related disorders.) First, if you aren’t reading The Myeloma Beacon regularly as a caregiver or patient of Multiple […]
