A Caregiver's Inspirational Journey Through Cancer
Posted in Abecma Car T, Caregiver Thoughts, Misc, Multiple Myeloma on Oct 1st, 2021
“Sometimes, the best way to help someone is to just be near them.” – Veronica Roth, Divergent Today I witnessed one of those moments between another couple in the throws of the journey of Myelomaville. My assessment was they are at the beginning of their journey, and I so wanted to go over and say, […]
Posted in Caregiver Thoughts, Multiple Myeloma on Jan 15th, 2021
“Courage is fear holding on a minute longer.” – Gen. George S. Patton We have had bits of respite here and there after Dave’s relapse in year 5 or somewhere in that time frame. Then things just started being troublesome. Little annoying little things that Dr. VanRhee was watching and suspicious of. Each time, his […]
Posted in Caregiver Thoughts, Caregiver Tips, Misc, Multiple Myeloma on Apr 12th, 2017
“Has anyone seen my brain? It ran off flailing and screaming about being overwhelmed this morning. I’d really like it back.” – Unknown This week I’m dog sitting nearby at someone’s home (not my usual, they usually stay at my house). Anyway, it’s a good quiet time for me to ponder all the […]
Posted in Caregiver Thoughts, Multiple Myeloma, Our Life on Apr 11th, 2017
“Change is the only constant, whether it’s in music, culture, dance or fashion.” – Sonu Nigam First, I’ve missed you guys, although many of us have migrated over to FB and the various groups there that offer us information, hope, and inspiration. I’ve felt for some time, as you may recall, […]
Posted in Multiple Myeloma on Nov 7th, 2012
“What part soever you take upon you, play that as well as you can and make the best of it.” ― Thomas More Dave and I are still basking in our recent check up in Arkansas, meeting with our doctor last Thursday. In a nut shell, Dave’s treatment has successfully ended. His scans, tests, labs, etc., […]
Posted in Caregiver Thoughts, Multiple Myeloma on Sep 28th, 2012
Andrew Schorr catches up with Dr. Bart Barlogie in Barcelona at a conference to ask the question, if emphasis is being pushed to make Myeloma a chronic disease is cure still a priority? An excellent interview that of course has some of the scientific complexities that make it difficult for the average layperson to understand, […]
Posted in Caregiver Thoughts, Misc on Oct 15th, 2011
“Two of the holy grails of medicine – stem cell technology and precision gene therapy – have been united for the first time in humans, say scientists.” – from article 0
Posted in Multiple Myeloma on Aug 24th, 2011
“….it’s the durability of remission that matters.” – Bart Barlogie, Director of the Myeloma Institute for Research & Therapy, UAMS International Myeloma Workshop 2011 HIGH-RISK ENTITIES OF MYELOMA: FROM BIOLOGY TO TREATMENT Dr. Barlogie – What is GEP-defined high-risk Myeloma? Bart Barlogie, MD Myeloma Institute for Research and Therapy University of Arkansas for Medical […]
Posted in Caregiver Thoughts, Misc, Multiple Myeloma on Jul 20th, 2011
“Without a knowledge of mythology much of the elegant literature of our own language cannot be understood and appreciated.” – Thomas Bulfinch “Science is a way of thinking much more than it is a body of knowledge.” – Carl Sagan A fellow TT-er and I were corresponding recently about an article we read and […]
Posted in Multiple Myeloma on Jun 26th, 2011
“Dr. Elias Anaissie of the Myeloma Institute for Research and Therapy at the University of Arkansas for Medical Sciences presented these guidelines at the International Myeloma Workshop (IMW) in Paris last month.” Excerpt from The Myeloma Beacon (click link for article) 0
Posted in Misc, Multiple Myeloma on Jun 14th, 2011
“…To overcome the anxiety associated with cancer and to foster patient participation, the MIRT has a longstanding open medical record policy; ie, patients have instantaneous and unlimited access to their own medical records.” Little Rock’s Myeloma Institute for Research and Therapy (MIRT), at UAMS, founded and directed by Dr. Bart Barlogie as made the […]
Posted in Multiple Myeloma on Jun 10th, 2011
Myeloma Clinical Trial Uses Natural Killer Cells YAY!!!! UAMS has formally announced the next phase of this research effort! This is what Jan & Bruce have embarked on. He is high risk aggressive and relapsed after enjoying a year in CR. It’s great to see a formal announcement about this research. I […]
Posted in Multiple Myeloma on May 17th, 2011
“Imagination will often carry us to worlds that never were. But without it we go nowhere.” – Carl Sagan Over at the Myeloma Beacon they have announced that Dr. Nair at UAMS is recruiting high risk myeloma patients for this trial. 0
Posted in Caregiver Thoughts, Misc, Multiple Myeloma, Our Life on May 9th, 2011
All is well, no worries… Sarah chided me (rightly so) for using a sensational headline! Sorry. It’s just we never really are too far from “Myelomaville” and I have been ‘away’ doing other fun and meaningful things in my life of late… a good thing. Thus, ‘Back to Myelomaville’ to check in and write… 2
Posted in Multiple Myeloma on Apr 25th, 2011
“A Cancer Institute researcher thinks the most aggressive myeloma tumors may soon meet their match.” – UAMS I’ve been really busy this week on a large scarf order where the yarn took way too long to come in and now I’m backed against a very hard deadline for a dear friend. So I will keep […]
Posted in Misc, Multiple Myeloma on Jan 18th, 2011
“I learn from my patients each and every day… I feel thankful for what they give me.” – Dr. Anaissie I’ve not met Dr. Anaissie, but have heard of him and always in high regard. If you have, feel free to leave your comments about your experience. 0
Posted in Caregiver Thoughts, Multiple Myeloma on Dec 17th, 2010
“The caregiver has to know what to do and who to call,” Lori said. It was such an honor to have Little Rock be my debut speaking engagement. I love it there and I love my “Myeloma Buddies”. Those I know and those I have never met. It is just a place that you step […]
Posted in Multiple Myeloma on Dec 14th, 2010
“…I’ve reached a point now where I view my myeloma as more of an inconvenience than incapacitating.” – Hosea Long Thank you Hosea, for sharing your story and offering Hope and Inspiration to the rest of us! 0
Posted in Multiple Myeloma on Dec 8th, 2010
“Many of the great achievements of the world were accomplished by tired and discouraged men who kept on working.” – Unknown This would certainly be a good description of Dr. Bart Barlogie and his “team” of researchers at UAMS. 0
Posted in Caregiver Thoughts, Misc, Multiple Myeloma on Nov 17th, 2010
“Life isn’t about waiting for the storm to pass. Its about learning to dance in the rain!” – Unknown I’ve just returned from my “speaking engagement” in Little Rock. A day of travel from Sacramento, nothing new there. There still isn’t a direct flight even when a travel agent takes care of it! A day […]
